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Relapse: Our Biggest Fear

by Chad Keck on October 21, 2015 · 0 comments

We are very sad to share the news we received this week. After Noah was sick for the past few weeks with what we thought was a viral infection, it has been confirmed that his leukemia has returned. He is relapsing.

Right now we know that the leukemia has returned in his central nervous system so it’s in his spinal fluid and the lining of his brain. This is particularly unfortunate as treatment will have to be focused in these areas along with the rest of his body and will include radiation therapy of his spinal column/brain (chance for severe side effects).

Noah’s entire treatment, since the day he was diagnosed just before his first birthday (~3.5 years ago) will have to start over completely. Another 3+ years starts next week. This time the treatment will be harsher and more dangerous all around and the prognosis gets worse with relapse.

Needless to say this is a shock to us all. More than anything we feel for Noah who was in the home stretch of his initial treatment. He just returned to school earlier this year, was able to be in more activities, was 1-2 months from completing his therapy and was incredibly exciting about going to Kindergarten next year.

He knows he is sick, but not why or how serious it is 🙁

We have faith in his treatment and his doctor, but Noah will need your positive thoughts or prayers more than ever now. We’ll get him through this.

First thing Monday morning his treatment will begin. He’ll have his current port-a-cath replaced (surgery) as well as a bone marrow biopsy performed. We hope that there is no relapse in his marrow which would require a transplant.

I’ll be posting updates here and on his former blog (www.noahkeck.com).

These next few days we’ll be making sure he gets to do everything he has wanted to do since the next few years will be very limiting and a tough road.

Thank you for all the encouragement, thoughts, prayers and other comments we’ve received so far. We really appreciate everything!

Noah has fought too hard to lose this fight now. We won’t let that happen.

(Pictures are from the hospital Tuesday. Poor guy was so scared/nervous. Was silent the whole time. He doesn’t say much about it, but he knows. Have to keep his spirits up.)

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